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PPI news

Pregnancy Research Priorities

The Pregnancy Research priorities survey aims to identify the most important questions for future pregnancy research in the UK. The survey is part of a study commissioned by the National Institute for Health Research (NIHR) and The Wellcome Trust on behalf of the UK Clinical Research Collaboration (UKCRC). The study aims to review pregnancy research funding in the UK and identify current pregnancy research needs, priorities and gaps. The findings of the study, which is being carried out by RAND Europe, will be used to inform recommendations for future pregnancy research in the UK. Click here to take the survey which will take 15 mins to complete and is open until 30 June 2019. Any questions, contact: Sue Guthrie at RAND Europe:

Involving young people

The Centre for Public Engagement is running a new master class on ‘Involving Children and Young People in Research’ which is aimed at researchers who want to learn more about involving children and young people in health and social care research. The master class will be at St George’s Hospital, Tooting, London on Tuesday 16 July from 1.30pm - 4.30pm.  For further information and online booking click here (please note that places are limited).

Wellcome Trust overhauls its public engagement fund

The Wellcome Trust will be closing the old public engagement fund, which will be replaced with a more strategic and efficient approach, which will help to discover, build and invest in ambitious, longer-term public engagement programmes. For more information click here.

NIHR CCF Public Involvement and Engagement Plan

  • The Commissioning Facility has published its Patient and Public Involvement and Engagement plan for 2019-20 with its five national priorities. This is available here.
  • The CCF PPI team has also published the latest set of PPI annual reports from around the NIHR infrastructure, available here.

Webinar: Co-producing research: How do we turn principles into practice?

Niccola Hutchinson Pascal of the UCL Centre for Co-production in Health Research will be hosting a webinar exploring the practicalities and challenges of undertaking co-produced research.

The first webinar by UCL and INVOLVE was held in March, with a second date being announced shortly.

For more information please click here.

CQC inspection framework – Support for clinical research further recognised

The latest news on the CQC project is now published with the significant milestone of the publication of the 2018 update of the CQC Well Led Framework (Trusts) which includes new research markers.

More information on this can be found on the INVOLVE website here.

Researchers are ‘missing a trick’ with public involvement

Health researchers are 'missing a trick' by not demonstrating how patients and the public have contributed to the design and conduct of research, the HRA has recently said. In this article, Jim Elliott, Public Involvement Lead at the HRA, looks at the importance of researchers describing their patient and public involvement in enough detail to make the REC (Research Ethics Committee) approval process more straightforward. Dr Sheila Fisher, Chair of an ethics committee in Leeds, talks about the purpose of RECs and offers advice for involving the public in research.

For more information visit the Health Research Authority (HRA) website here. 

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